Have you ever wondered how useful and efficient it is to use the CD57 count as a marker in identifying if you (1) have Lyme (2) is is getting better or worse? On February 21, 2015, Ginger Savely spoke to the North Texas Lyme Group through teleconference. We were still getting used to all of our equipment and has a few glitches, but in the end we were able to get Ginger’s presentation up and running. Whew! Talk about stress. I love it when technology works, but when it doesn’t-ugh!
We learned a great deal about using CD57 teats as markers, but also learned that many of our doctors are using it to determine how well we are doing and to manage treatment. Ginger says your doctor should not be running the test more than twice a year. And if the markers have gone down a little, this doesn’t mean you are getting worse. If they go up slightly, it doesn’t mean you are getting better either. There must be a significant change in the number to determine how your body is healing and handling the Lyme. It is a good tool to have in your pocket, but don’t rely solely on it. The If you haven’t been tested, get your CD57 test done by an LLMD (Lyme Literate Medical Doctor) and send off for the IGENEX test out of California. The IGENEX is not covered by insurance and will cost around $200, but it is the best-know test for identifying Lyme, but understand it is not 100% accurate. The CD57 is covered by insurance.
There is much to learn at the NTXLyme Group meetings. We hope you will join us on the third Saturday of the month to hear what our doctors and specialists are sharing with us. You may register and reserve your seat at NTXLyme.org.