Disclaimer: The opinions you hear at our meetings may or may not be the opinion of the North Texas Lyme Group. We do not make referrals to the speakers. We simply make their information and care recommendations accessible to the public, from conventional to unconventional practitioners and specialists.
The North Texas Lyme Group meeting began with various announcements.
Of particular importance is the change of meeting location. The address and driving directions are currently on the home page at http://www.ntxlyme.org. Martha Paschall-Boykin, the group founder, shared that, due to space limitations, attendees must register via the Eventbrite website. Additionally, building use regulations prohibit the group from accepting donations at the door. Donation options include giving on the Eventbrite page or via PayPal on http://www.ntxlyme.org.
Dr. Ronald W, who practices in Denton, shared a fast-paced presentation that included information about what are called “persister” organisms. He discussed the work of Ying Zhang, MD, Ph.D. (Dept. of Molecular Microbiology and Immunology, Bloomberg School of Public Health, Johns Hopkins University, firstname.lastname@example.org) and referred to it as a “must read.”
Certain combinations of antibiotics and dosing schedules are being studied to see what will address the persistent Lyme. Dr. W. noted that conditions such as leprosy and tuberculosis treatment are models for treatment persistent infection – multiple drugs for an extended period of time. Dapsone is currently being investigated in a trial of 400 patients. Dr. W. further remarked that Dapsone has potentially lethal side effects.
Regarding biofilms, Dr. W. stated that some natural products are actually more effective than prescription medicines. For example, a recent study by Dr. Jie Feng, et al. showed that the top 5 essential oils (oregano, cinnamon bark, clove bud, citronella, and wintergreen) at a low concentration of 0.25% showed more activity than the persister drug daptomycin. In addressing biofilm, Dr. W. uses stevia for 18 months. In his experience, some patients may experience a herx reaction with only 1 or 2 drops.
The following is adapted from Dr. W’s handout, “WHAT YOU CAN DO NOW WITHOUT A PHYSICIAN”
- Stevia: alcohol extraction of the leaf by Nutramedix. In a study by Dr. Sapi, stevia had better activity than 3 persistent antibiotics together. It also kills spirochetes and breaks up biofilm. Dr. Horowitz’s book recommends 15 drops, twice per day. Non-toxic, inexpensive, and may be taken for extended period of time. No glucose so there are no diabetic issues.
- Zhang study published online May 17, 2017 (must read). 5 essential oils studied, 3 had better kill against persisters than any antibiotic or combination used for persisters. Also, the bugs were REAL DEAD, with no growth when subcultured. Best were oregano, cinnamon bark, and clove oil. Others include citronella and wintergreen. No recommendations for dosing. I would refer you to practitioners who do this regularly such as ND’s.
- Herx: stevia and others can cause Herx even in low doses so have your “stuff together.”
- alkalize blood with Alka-seltzer Gold (online) and/or ½ lemon or
lime in water 3 times per day
- alpha lipoic acid, glutathione, resveratrol, curcumin, broccoli seed
- For an acute Herx: pinella/burbur protocol:
10 drops of each every 10 minutes for 2 hrs., repeat up to 3 times
- Combined smilax, redroot, boneset (Researched Nutritionals)
- There may be many others, I go with Dr. Horowitz
On, Saturday, July 16 Dr. David E. Winslow shared information with the North Texas Lyme Group. Dr. Winslow is in the general practice of non-invasive cardiovascular medicine in Coppell, TX. He incorporates the use of “oxidative medicine” into his medical practice – treating “circulation, infection, and inflammation.” Oxidative therapy is reported to mimic the body’s natural process of oxidative bursts in response to viruses, fungus, bacteria, or parasites. He holds US patent #7968127 for the treatment of blood clots. Suggested internet search terms include: “photodynamic therapy atherosclerosis” & “medical ozone.”
Dr. Winslow described the progression and composition of artery clogging plaques, (atheromas) a tumor-like change in the smooth muscle of the arterial wall (also known as smooth muscle hyperplasia). Culture investigation reveals that atheromas are often found to contain chlamydia and/or cytomegalovirus. It was noted that viral infections often co-occur with Lyme disease.
The presentation primarily focused on two “arms” of oxidative treatment – typically administered together:
a) tetroxane (from geraniol), and
b) porphyrin (Visudyne)
The tetroxane used by Dr. Winslow is comprised of four oxygen molecules bound to a terpine. This is thought to be very stable, going throughout the body releasing oxygen killing viruses, fungus, bacteria and parasites. Dr. Winslow noted that Dr. Robert Hoffman in Austin, TX has used ozonated terpene to successfully treat the dry form of macular degeneration.
Visudyne (US patent 6235767), an FDA approved drug – a man-made chlorophyll, is potently antiviral.
DON’T’S: Vitamin E, selenium and grapeseed may not be taken during treatment as these stop the mechanism of action. The only contraindication to the treatment is active bleeding.
DO’S: Vitamin C (as mineral ascorbate), CoQ10, and high-quality alpha lipoic acid. Drinkable glutathione is available from Wellness Pharmacy in Alabama, USA. Inhaled glutathione was recommended for COPD.
Liver cleansing has been helpful for symptoms of Lyme disease. Some oxidative therapy patients have experienced improved metabolism and healing capability.
NTXLyme Group Meeting June 18, 2016
Mark and Scott Jackson – Hyperbaric Approach to a Cure
Martha Boykin, the group’s founder, said a few words about changes that are taking place for the NTXLyme Group. Although she will be stepping down as president, Martha will continue to perform many “behind the scenes” duties that are necessary for the group to function. One or more people are needed to come forward to arrange for speakers. Martha will be available to support the new facilitators as they become acclimated to the activity. Christian Munsch, a meeting facilitator, shared that he actually found it an enjoyable experience as he arranged for meeting topics and speakers.
Scott Jackson, a life-long Alvarado resident, began the presentation. He described a lifestyle that centers on faith and family. Scott grew up on a farm, loving high school and college athletics. He earned a business degree from Oklahoma Christian University followed by a varied work history including General Dynamics, public education, keeping cows and bees, and working in Branson as a professional hammer dulcimer musician.
About 5 years ago Scott began to suffer perplexing symptoms, seizures being the worst because those most directly affected his ability to provide for his family. A neurologist diagnosed him with migraines. This neurologist, Dr. “X”, stated that she didn’t “believe that Lyme crap” and further stated, “Tell me the diagnosis you want and I’ll give it to you.” Scott subsequently found a practitioner who helped him see some improvements. He did try LDI, but did not see any significant improvement. Scott’s most profound improvements came once he began a series of treatments using Hyperbaric Oxygen Therapy (HBOT). At first his seizures increased. To date Scott has had a total of 54 treatments and reported that he feels “clearer and better able to think.” His good periods are lasting longer and his lows are not as low.
Mark Jackson introduced Ed Betts from ANDI International (Freeport, New York) who joined the meeting via Skype. Ed’s experience includes extensive and significant contributions to the diving industry. He discussed the rationale and mechanism by which HBOT can be used to ameliorate the symptoms of Lyme disease and other conditions such as burns, traumatic brain injury and stroke. HBOT delivers 100% oxygen at pressures greater than atmospheric (sea level) pressure to a patient in a specially designed chamber resulting in increased amount of dissolved oxygen being delivered into the blood. The U.S. Navy has been using HBOT since 1930.
Mark shared that the Patriot Clinic is using HBOT and serving eligible U.S. veterans free of charge.
This month’s meeting was conducted by Ruth Kriz, a nurse practitioner who practices in Washington, DC. She specializes in Interstitial Cystitis, with an interest in tick-borne infections, biofilms, and hyper-coagulation.
As she stated, “Anyone with chronic illness has some degree of biofilms.”
Some people are more susceptible biofilms, though. Biofilms can be found in individuals with a high infectious load, chronic infection, depressed immune function, hereditary coagulation genetic mutations, high cholesterol, and elevated toxic metal load. Addressing biofilms requires a multi-pronged approach to include a controlled targeting of biofilms, so as to not release too much at one time; the use of antimicrobials to control what is released from the biofilm; and immune support to help the body as it deals with the toxins being eliminated. Controlling inflammation is necessary to reduce complications in those with coagulation mutations. She uses niacin to address high cholesterol, lumbrokinase to address excess fibrin, and EDTA to chelate heavy metals. The herbals she likes to use include Beyond Balance, Byron White’s formulas, and Cowden’s protocol, especially for medically fragile people. She also mentioned a new test for lyme by Neuroscience that she is having good success with called Ispotlyme. This test can tell if lyme is active, how active and if it’s gone.
Some things of importance that she mentioned:
–Some bacterial issues can cause cancer directly, so biofilms should be addressed as soon as possible.
–Those with large biofilms have less symptoms than others and are harder to treat.
–Inflammation triggers the coagulation pathway, which leads to biofilms.
Ruth only treats people that have bladder involvement as part of their lyme symptoms. She is willing to work with people over the phone as well as in person.
January 16, 2016
Dr. Charles R. Hamel, MD gave an overview of the therapy known as Low Dose Immunotherapy (LDI), Small intestinal bacterial overgrowth (SIBO), and connections to autoimmune disease. His talk was followed by a lively question and answer session.
Dr. Hamel briefly outlined the developmental progression and investigating doctors involved. The therapy was originally termed, “enzyme potentiated desensitization.”
The LDI treatment concept, developed by Ty
Vincent, MD of Fairbanks, Alaska, is an outgrowth of the Low Dose Antigen (LDA) therapy. LDA targets sensitivities to foods, chemicals and airborne substances. Some patients consult with Dr. Vince
nt via Skype. LDA and LDI can be given simultaneously. An example protocol sheet was provided to the attendees.
Symptomatic patients tend to have abnormal helper to suppressor cell ratios. One goal of treatment is to help the body produce the correct amount of suppressor cells which work to decrease inflammation. Full development of suppressor cells is expected in 21 days from the LDI dose with the subsequent dose following in 7-8 weeks. Cortisone can be used to ameliorate any distressing post-treatment symptoms.
Healing is Voltage (Energy)
The October meeting featured a very engaging and informative presentation by Dr. Jerry Tennant. Although his expertise has widened considerably, he initially began his medical practice as an ophthalmologist some 55 years ago. A full-color, spiral-bound handout was provided to each of the attendees who had registered in advance.
Dr. Tennant made the case that the prevailing paradigm, which is based on pharmaceutical and surgical medicine, does not help those who are suffering from chronic diseases. Dr. Tennant noted that chronic disease occurs when a person loses the voltage needed to make new cells that work properly. Each organ has its own power supply (a specific stack of rechargeable muscle batteries) and each stack of these batteries is an acupuncture meridian.
In addition to voltage concepts, topics such as vitamins/minerals, quality water, pH, free radicals, parasites, Lyme bacteria, adrenal fatigue, internal and external scars, emotional wounds, dental infections, and many others were discusse
Participants joined Dr. Tennant to help demonstrate muscle testing for dental infections and work with emotional “blocks” to healing.
Mary Kay Wilson
We have been running the NTX Group for 7 year, and feel it is time to refresh the group. We will be taking on new facilitators as Christian and myself move into more tech and administrative duties. We are sorry to see Debra Sewell and Kerri Simpson move on, but we understand. Thanks for you service.
North Texas Lyme Group hosts a monthly support group focused on sharing information and providing support to those affected by Lyme disease.
Meets the 3rd Saturday every other month
10:45 AM-12:30 PM
The Hills Church—The Chapel
6300 NE Loop 820
North Richland Hills, TX